Family caregivers of children with  disabilities care for their loved ones in the familiar surroundings of their own home or community. These caregivers are “on call” 24-hours a day, 7 days a week because they want to see their children remain in the comfort and security of their own environment. But at some point, even the caregiver needs a break, a rest, or a breather. The caregiver needs respite. 

Respite Outreach Care for Kansans Organization (ROCKO) is a non-profit group that provides caregivers in Butler and Sedgwick County a break from ongoing care demands to rest, refresh and recharge.  Currently, ROCKO serves children with special needs from infancy through 23 years old and their siblings. Siblings are welcome at the events, offering parents a complete break from caregiving.

Gina Ervay of Andover, mother of 8-year-old Megan, who was born with Down Syndrome, founded the organization in 2002.

“I met a lot of caregivers and found that we all had a common thread -- it was difficult to find help and care for our kids. I decided to try to connect people that want to help and those that need the help.  We would be that connecting piece,” Ervay explained.

She had a background in healthcare and began visiting with professionals and found that they also saw a need.

“One by one I talked with them and others in the community and we began sharing a vision...most people have family members or friends that deal with the struggles of caregiving.”

Ervay found special education teachers, nurses, therapists and others trained in the health care field to become a part of ROCKO.

The organization’s structure is balanced -- 50 percent providing respite for the caregivers and 50 percent is enrichment programs with opportunities for socialization.
“Socialization is harder for these kids and this helps them develop a network of friends. 

They want that. When they develop a comfort level and become friends with others, their lives are enriched,” she continued, “It’s a simple, yet powerful concept. It strengthens marriages, lowers stress and brings balance in the homes.  And all the while helping the kids overcome social isolation.”
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The Steve Pazzie family of Augusta participates in ROCKO events.

“Our 22-year-old son, Jeremy loves going to all of the events. He has the best time. He is non-verbal and can’t say, ‘You’re driving me crazy, I want to be with my friends.’  He doesn’t get to go many places and this is an opportunity for him to be with friends he’s made.  And he enjoys all of the activities,”  said Jennifer Pazzie.

And during the short-term, temporary time that he is at ROCKO events, his parents are able to take a break.

Jennifer agrees that the break is nice, but the positive experience for Jeremy is the best reason for attending the enrichment sessions.

There are regular events in Augusta, El Dorado and east Wichita.   If you are a caregiver and would like to find out more about ROCKO’s services, or someone that wishes to donate, visit:  www.rockoinc.org  or call 687-5700.